Saturday, November 1, 2008

I am going to spend time with Jack...........


Told our pastor that I would not be in services tomorrow; I have the best of reasons.
I am going to spend special time with my husband.

We had a particularily bad time at a new wound care clinic last Friday. Although a medical field they have no concept of the handicapped patient. We left home a few minutes after 8 am. I knew they would have a stack of history to complete so we did arrive early and started on the paper work. We finished at exactly the time of our appointment. Our drive time averages 50 minutes to an hour. So we have really made an effort to be ready at 9:45am. However we sat and waited until 10:30 till we were taken into a another room to continue to wait. We saw several different people who did numberous things and asked numerous questions. Finally we see the doctor who reasks the same questions.etc.

Diagnosis............prescription......treatment..... appointments..........it is almost 1pm before we are able to leave........of course there is no one in the building but us and two staff members trying to do their job. I wasn't feeling well, and Jack was tired of sitting without opportunity to change his seating. Each time he tried they would ask what are you doing.... where are you going.... you can't leave...etc. All he wanted to do was hold on to something sturdy and resit just to give his body a small change.

Of course we have to get a prescription filled and the pharmacy does a rush on it.. but it was after 2 when we finally got home. Needless to say we were both exhausted. Jack said I was cross and rude to the poor girls who were trying to do thier job.. They did explain they were short on staff and long on patients.......IS THAT OUR PROBLEM?
What really upset me is here we have a hospital care unit and they have no understanding of the problem of a handicapped patient.

They scheduled our appointment on Monday at 1:30.... and would TRY to get us out by 2:30 so we could made the appointment they made for us across the street and in another complex 15 minutes later. Of course would be hard for someone able bodied and doing a power walk....if they can find a parking spot. I can see Jack and flying along the sidewalk and down the halls to a reception area to be reassign to another place. I think I will have to hire a ride along to take Jack to the reception area while I hunt a parking spot... can't use valet because who can say when we will be done and they close the parking area and you have to hunt the place where they take the keys,etc.

Now this isn't all...they suggested we come earlier in the morning and doing lab work that should take some time. Of course...come early... bring a picnic basket, a bed roll and plan to stay. I will be calling on Monday to explain that we will be making another hour drive there and back on Tuesday to do the Lab work because I won't make Jack spend a day sitting in that chair. People who sit a while move around... move to another place... walk around.....not sit there and wait and wait and wait when there are often sores on his bottom from just such situations. Geesh...and this is a hospital!

I might be crabby and rude all over again! smiles

2 comments:

Unknown said...

"cross and rude" is sadly too often the ONLY way that a caregiver can get through some thick skulls. I always think of it as wearing my 'medical advocate' war paint.

Caregivingly Yours, Patrick
http://caregivinglyyours.blogspot.com/

http://patrickleer.blogspot.com/

Paula said...

I think you need to point those things out to them.They need to know what it's like to be on the other side of their jobs and you can give that view. Jack needs to tell them how uncomfortable he was and how sitting there for such a long time caused further skin breakdown.How frustrating that had to be.