Saturday, June 26, 2010
Friday, June 25, 2010
A Shower to cool the air........and make lots of humidity!
Well, we received a welcome shower last night but the counter part is lots of humidity. When the nights are 80 what do you expect during the day?
Yesterday was not a good day for Jack. He had chest pains and his legs were so painful as well. The nurses finally told him that he could expect the pain as part of the disease and they would help as much as they could with medication. The chest pains seemed to be indigestion and when I alerted the nurses they took care of that. Jack doesn't want to be a complainer so he won't say anything when he is in discomfort. He lets me do that! LOL In fact he felt so bad he ate very little lunch but in the evening they brought him his evening meal and he was looking forward to it when he gave me the 5 o'clock call.
Days are difficult. I find that sometimes it is just hard to go to the nursing home. I know I will find problems, discomforts, and in general life breaking down. I understand why many don't go, although the visits are so looked forward to by the patients. The smells, the pain, the constant reminders that life is so out of their control. Some of us who are there everyday become hardened to the obvious and just look into the eyes and try to make smiles. I do lots of back rubs. One lady said, "She always rubs my back when she goes by and it feels good." I also give a prayer in that touch that the day will go well for that lady. Jack wants lots of smooches.......to keep him reassured that I love him. Sometimes their situations are not very lovable but the patients stay as lovable as ever.
I do a bible study every week,sometimes I forget to sign in.......like this week. I must do that! We have been trying to do a little craft project with the bible study. We made pots of flowers when we studied about the potter and the clay. This past week we decorated flyswatters when we talked about swatting the "flies" that annoy our daily walks with the Lord and with others. I found some bibles at a thrift shop.......many come to the facility straight from the hospital with few or no possessions.
The bibles are already finding homes. It helps to really know these people, and find ways to reach out to them. If I can inspire them for a few minutes every week, that is great. We average from 12 to 14 and that will grow I hope.
I have been going to an exercise class. Yesterday, I gave up early after 45 minutes of constant movement in a hot room, I decided I had reached my limit. We have a fan but it is just not enough to keep the air moving and do any cooling. I went right to the grocery store which I knew would be cold, and soon felt better. The heat and humidity are really wearing us down and summer has just begun! lol
Blessings on all of you........caregiving is a big responsibility. Mine has shifted somewhat but I still am constantly involved with my husband everyday.......usually twice or more depending on the activities of the day. The facility is 10 miles away but sometimes I just have to go back again! smiles No one knows the weight on the shoulders until they carry the load!
Yesterday was not a good day for Jack. He had chest pains and his legs were so painful as well. The nurses finally told him that he could expect the pain as part of the disease and they would help as much as they could with medication. The chest pains seemed to be indigestion and when I alerted the nurses they took care of that. Jack doesn't want to be a complainer so he won't say anything when he is in discomfort. He lets me do that! LOL In fact he felt so bad he ate very little lunch but in the evening they brought him his evening meal and he was looking forward to it when he gave me the 5 o'clock call.
Days are difficult. I find that sometimes it is just hard to go to the nursing home. I know I will find problems, discomforts, and in general life breaking down. I understand why many don't go, although the visits are so looked forward to by the patients. The smells, the pain, the constant reminders that life is so out of their control. Some of us who are there everyday become hardened to the obvious and just look into the eyes and try to make smiles. I do lots of back rubs. One lady said, "She always rubs my back when she goes by and it feels good." I also give a prayer in that touch that the day will go well for that lady. Jack wants lots of smooches.......to keep him reassured that I love him. Sometimes their situations are not very lovable but the patients stay as lovable as ever.
I do a bible study every week,sometimes I forget to sign in.......like this week. I must do that! We have been trying to do a little craft project with the bible study. We made pots of flowers when we studied about the potter and the clay. This past week we decorated flyswatters when we talked about swatting the "flies" that annoy our daily walks with the Lord and with others. I found some bibles at a thrift shop.......many come to the facility straight from the hospital with few or no possessions.
The bibles are already finding homes. It helps to really know these people, and find ways to reach out to them. If I can inspire them for a few minutes every week, that is great. We average from 12 to 14 and that will grow I hope.
I have been going to an exercise class. Yesterday, I gave up early after 45 minutes of constant movement in a hot room, I decided I had reached my limit. We have a fan but it is just not enough to keep the air moving and do any cooling. I went right to the grocery store which I knew would be cold, and soon felt better. The heat and humidity are really wearing us down and summer has just begun! lol
Blessings on all of you........caregiving is a big responsibility. Mine has shifted somewhat but I still am constantly involved with my husband everyday.......usually twice or more depending on the activities of the day. The facility is 10 miles away but sometimes I just have to go back again! smiles No one knows the weight on the shoulders until they carry the load!
Tuesday, June 22, 2010
Father's Day
Holidays are sometimes traumatic. I purchased a rather expensive men's Cologne for Jack for Father's Day. Well, we have had some things "walk", usually small things like room spray,etc. Sometimes his glasses disappear but seem to reappear with a little searching in nearby rooms or "walkers" pockets.
This time all the searching and questioning seem to turn up nothing. I happened to have the receipt because the store told me to return it if the scent was not agreeable to Jack. He is very sensitive to odors.
After an investigation they said they would give me a check for the item. I told them to forget it, things like this could happen with lots of visitors, etc. But they insist that is Jack's home and to take things from his home is definitely wrong.
I think they have some suspicions about the disappearance.
But otherwise the day was fairly nice........roast pork which neither of us like.........but I had a salad for Jack and we shared the vegetables on his plate....and I had made a cheese cake for him. We faired very well!
The symptoms are becoming more pronounced. Jack is very agitated, easily brought to tears. He has threatened the staff because they are not being good to him. His threats are to turn them in....to whom? Or into frogs? lol Anyway they seem to understand this is the disease.
His eating habits are really getting messy and he gets really upset about the food being wrong for his diet. Which is heart healthy. There are some mistakes but for the most part quite acceptable. Just not to him!
He keeps commenting "he is afraid". He can't tell what he is afraid of or afraid of what.......but I think he is feeling the loss of control of his life. Yes, that is very frightening!
Blessings for the day to all!
This time all the searching and questioning seem to turn up nothing. I happened to have the receipt because the store told me to return it if the scent was not agreeable to Jack. He is very sensitive to odors.
After an investigation they said they would give me a check for the item. I told them to forget it, things like this could happen with lots of visitors, etc. But they insist that is Jack's home and to take things from his home is definitely wrong.
I think they have some suspicions about the disappearance.
But otherwise the day was fairly nice........roast pork which neither of us like.........but I had a salad for Jack and we shared the vegetables on his plate....and I had made a cheese cake for him. We faired very well!
The symptoms are becoming more pronounced. Jack is very agitated, easily brought to tears. He has threatened the staff because they are not being good to him. His threats are to turn them in....to whom? Or into frogs? lol Anyway they seem to understand this is the disease.
His eating habits are really getting messy and he gets really upset about the food being wrong for his diet. Which is heart healthy. There are some mistakes but for the most part quite acceptable. Just not to him!
He keeps commenting "he is afraid". He can't tell what he is afraid of or afraid of what.......but I think he is feeling the loss of control of his life. Yes, that is very frightening!
Blessings for the day to all!
Friday, June 18, 2010
I Wish I Knew When the Storms...........
I finally had a chance to talk to the nurses that were with the doctor when Jack said that the doctor said he could go home...............well, actually Jack asked if he could go home and the doctor gave him the standard I will talk to the family but at this time you need to be right where you are!
One nurse said that is a typical male.........only heard what he wanted to hear! But even though it might be funny to think about it after the fact it caused some loss of sleep and real worry. The head nurse said he wants to go home so badly that he heard just that. Yes, Jack wants to go home but I am not able to take care of him 24/7 like they can at the nursing facility. Actually I could not take care of him for an hour probably because he does need a lot of attention which he doesn't realize that he gets. Nurses are always patroling the hallways looking in rooms and checking on patients. He doesn't always see them and doesn't realize that they are there.
He has not mentioned the idea again so guess somewhere down in his heart he knows that this isn't a possibility. At least I don't have to address this problem today! The home moved Jack out of his room for about 4 hours, painted, stripped the floors and put on 6 coats of wax, did the windows,etc. They also wanted to shampoo his chair and came to the house and moved another twin chair up to the facility so there will always be two chairs for him to use. Also, there will be a place for me to stay if I need to, or can rest during the time I am there. Jack does not use a bed, but an electric lift chair that flattens out into a sleeping position. Because of his lack of mobility since hip surgery he is not able to lift his legs on to a bed and when he gets into bed he can not move himself about. He found out just how difficult that was again when he was in the hospital in August if 2oo9. With the lift chair he can sit up, stand up, then sit down again and lay back to rest.
The day they came after the chair he had a real meltdown.........said he was 80 years old and all he had was a room and two chairs to his name!
He had been "hearing about women who took everything their husbands had", and they were bragging about it! Another event with the brain playing tricks...this is happening more frequently. He hears, see, knows, dreams, or thinks about things until they become reality. The man across the hall has been saying his wife has all his money,etc. It doesn't take much to influence another patient or give them ideas. We have already been through the "another man" stage. The only other men in my life or the "gay (fixed) cats" that live at this house! lol
The stages of Parkinson's Disease vary with every patient. I am glad the nurses at the nursing facility are familiar with those stages. I sometimes forget to recognize something as just one of the things with go with the disease. This isn't an easy life.
Happy Father's Day to all the fathers out there!
One nurse said that is a typical male.........only heard what he wanted to hear! But even though it might be funny to think about it after the fact it caused some loss of sleep and real worry. The head nurse said he wants to go home so badly that he heard just that. Yes, Jack wants to go home but I am not able to take care of him 24/7 like they can at the nursing facility. Actually I could not take care of him for an hour probably because he does need a lot of attention which he doesn't realize that he gets. Nurses are always patroling the hallways looking in rooms and checking on patients. He doesn't always see them and doesn't realize that they are there.
He has not mentioned the idea again so guess somewhere down in his heart he knows that this isn't a possibility. At least I don't have to address this problem today! The home moved Jack out of his room for about 4 hours, painted, stripped the floors and put on 6 coats of wax, did the windows,etc. They also wanted to shampoo his chair and came to the house and moved another twin chair up to the facility so there will always be two chairs for him to use. Also, there will be a place for me to stay if I need to, or can rest during the time I am there. Jack does not use a bed, but an electric lift chair that flattens out into a sleeping position. Because of his lack of mobility since hip surgery he is not able to lift his legs on to a bed and when he gets into bed he can not move himself about. He found out just how difficult that was again when he was in the hospital in August if 2oo9. With the lift chair he can sit up, stand up, then sit down again and lay back to rest.
The day they came after the chair he had a real meltdown.........said he was 80 years old and all he had was a room and two chairs to his name!
He had been "hearing about women who took everything their husbands had", and they were bragging about it! Another event with the brain playing tricks...this is happening more frequently. He hears, see, knows, dreams, or thinks about things until they become reality. The man across the hall has been saying his wife has all his money,etc. It doesn't take much to influence another patient or give them ideas. We have already been through the "another man" stage. The only other men in my life or the "gay (fixed) cats" that live at this house! lol
The stages of Parkinson's Disease vary with every patient. I am glad the nurses at the nursing facility are familiar with those stages. I sometimes forget to recognize something as just one of the things with go with the disease. This isn't an easy life.
Happy Father's Day to all the fathers out there!
Friday, June 11, 2010
new developmrnents
It did shower last night.........but the biggest storm came by way of a phone call...........Jack said the doctor said he was able to go home???????????? There is a mistake somewhere! After a year and four months in a facility........he is able to be cared for a non professional? No, I am not able to lift this 300 pound man, cope with the sometimes violent reactions to anger, and professionally monitor his on going physical condition.
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