Jack is still doing fairly well. Night terrors, confusion, and other problems seem minor to the results of withdrawl from one of the medication he was taking.
We have chosen to make every day special in some way. We go a lot, take walks (me walking=Jack chairing). Shop a lot, eat out, go to church, work with music and just enjoy quiet times together. My daughter calls it our honeymoon again. And perhaps it is the eye of the storm before something else happens.
I really feel it is the lull before the storm but hoping the storm will be not so severe and we can continue to enjoy our lives. Someone said this week that Parkinson's is a cruel disease. What disease isn't cruel in some way.
He enjoys working with his music and getting back to that is like therapy in itself. He walked quite a bit for awhile but his legs because so tired and weak again that he has slowed down again. I understand that the legs don't really return to the former strength. He doesn't know this.
The wounds on the legs are very near a complete healing. We are anxious to have that day arrive because then Jack will be allowed to take showers again. It has been 6 months. His doctor said this week she just didn't realize the difficulty of doing without showers-- that she tells her patients with wounds. She just returned from National Guard Duty and had a week without a shower and she realized anew how difficult her requirement was.
Tomorrow is another special day. We will spend time together. It is Sunday and he will come to church / dinner and music in the afternoon. He has invited people from the home. Some staff has said they plan to come and a resident will come with us. It promises to be a good day. Everyday has to be special now.
Saturday, May 30, 2009
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